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We refer all patients who contact us to the TBSP. It is a great way for them to contact others who are going through similar experiences.
Melanie Matthews, TB Alert
The TBSP is one of its kind! I just learned about it this month and I was impressed by the idea of giving patients and affected communities a platform where they can be heard and share their life experiences. This initiative will definitely bridge the gap between and among TB patients, care providers and program staff. I am looking forward for TBSP as a source of additional learning for me. Let's all support TBSP.
Albert Angelo L. Concepcion RN, MHSS, Program Coordinator, Makati City, Philippines
I know what it's like to suffer from TB, especially these days when it's so linked to HIV/AIDS. I come from a home where TB seems like a genetic disease as it attack every other member of the family. But what's most important is the support one needs from family and friends. I wish people can stop stereotyping people with TB and give them their unconditional love and support. I respect you for having such a website where one can read more encouraging stories from other survivors
Mahliki, University of Cape Town, South Africa
“Thanks for this initiative. Let’s now fill it with more country specific information and make it useful to those who don’t read English. This will be an excellent site for general information for the greater public. Cheers!”
Ezio T. Santos Filho, TB-HIV Activist, Rio de Janeiro, Brazil
“The new layout is great. TBSP comes across as a reliable and professional brand. By presenting realistic information specifically for TB patients TBSP fills a gap in TB awareness materials, which often do not ‘tell it like it is’. I hope to see the TBSP expand in years to come as a unique resource for TB patients and healthcare providers who will benefit from the insight it provides. In giving patients a voice and peer support TBSP is an impressive example of social mobilization in action. Congratulations and keep up the good work.”
Evelyn Harvey, PhD Student, NIMR/HDN
“TBSP is a brilliant concept that will not only support and engage those with TB and MDR-TB, but those of us engaged in advocacy. It will be a great resource for our work.”
Sheila Davie, National Director, Results UK, United Kingdom
“This website is a very good initiative. It is very informative and I will encourage all TB providers and NGOs to link up with this. This will help to get information to all concerned in the fight against TB.”
Prof. E. A. Dosumu, Professor of Medicine, Mercy Specialist Hospital, Nigeria
“This will prove a really useful website as an educational tool for health and social care providers. I will promote it as part of the work based learning module on inter-agency working in tuberculosis as part of the user involvement component. The module is designed for health and social care staff.”
Dr. Gill Craig, Lecturer, City University, United Kingdo
“This (TBSP) is a good way to give support to TB patients in an easily accessible platform.”
Chris Granger, Director Professional Relations, Oxford Immunotec Ltd, United Kingdom.
“This is a resource that can help people living with TB/MDR-TB as well as health professionals. I like the idea of using cured patients providing support to people living with the disease.”
Tesfa Ghebrehiwet, Consultant, International Council of Nurses, Switzerland
“This is a great website – very clear and well crafted. I would like to provide you with information and monthly updates on TB and MDR-TB.”
Glenn Thomas, Communications Officer, World Health Organization, Switzerland
“A great idea, it is a step from patient experience to contributing to TB control globally. All TB stakeholders should come up and support patient initiatives in TB control so that together we can make this world free of TB. The announcement of the Challenge Fund for Civil Society (CFCS) is a true recognition that investing in community voices will yield greater results in TB from the grassroots all the way up.”
Lucy Chesire, Advocacy Consultant, TB Action, Kenya
"I've just had a chance to look properly at the website. I really like it and only wish it had been around when I was ill. My experience of MDR-TB made me feel really isolated and frustrated. I had never heard of, or met anyone with TB. The Tuberculosis Survival Handbook was given to me by a nurse - it was my only link to another person who knew what the experience was like. This website realy looks like it will address this problem."
Anna Watterson, former MDR-TB patient, United Kingdom
"I read The Tuberculoisis Survival Handbook a few years ago and it was a
real
insigh t and education into the harsh reality of MDR TB. It moved me
deeply as it was the first time that I had any contact with another
TB survivor and I'll never forget the impact it had on me."
Ndidi Okanta
What a great idea!! I am intrigued by this project and wish it much success. I think there is much valuable information out there from providers and patients for whom this website will be a vital forum and resource. Congratulations to those who thought of it, created it, and will maintain it!
Betty Gore RN MSN CIC
Dept. of Health and Environmental Control
Columbia, Canada
